CLOTHES GET ON MY NERVES

BEWARE THE NAKED MAN

Clothes get on my nerves. My sciatic nerve particularly. My back is degenerate, like mortal and pestle grinding my cartilage to dust. The nerves make me squeal, any waistband or belt draws the pain into my groin. Be aware of the naked man, spread-eagled on 400 thread cotton sweat shop sheets, me filling the queen size with my nakedness and pain.

My left foot has been amputated. To my surprise,  a great deal of my left foot pain has been eradicated. I didn’t expect it, and most health professionals, and people with lived experienced with amputation, didn’t either. I could no longer walk on my left foot, switching it out for a prosthetic will allow me to walk again, which is the outcome we’re still waiting for as my wound heels. Stage Four Flat Foot was the name of my condition, indicating soft tissue could not support my ankle from rolling in and under itself. Aye, there’s the rub. I have “lousy cartilage genetics,” and my foot was once described as a birth defect expressing itself now.

My pain continues being original to me, as everyone’s is; and there’s plenty enough to go around my body. The last couple of days were difficult because of my increased activity.  My remaining limbs are picking up all the slack. This is most notable on my right side, which already has an artificial hip. Hopefully, I’ll be walking soon, to reduce the stress on my better foot.

Bad cartilage genetics is osteoarthritis in my back that’s disk degenerative disease and spondylolylisthesis.  Sciatica (good name for a geriatric metal band,) is what my parents’ generation called it, though in that case it is primarily one nerve, the sciatic nerve that is pinched. There are more nerves between more vertebrae and disks collapsing and pinching nerves. Spondylolylistthesis.just a little different in that the degeneration of cartilage and genetics, or trauma have cause one vertebrae to tip over forward the one beneath.
It’s also damn hard to spell.

I don’t have scoliosis, which is curvature of the spine usually moving to the right, giving rise to a hump like Richard the III my Tante Neufeld (who lived to be 94), and my sister. Then there are joints with repetitive use wear and tear, which is accelerated if you don’t have good cartilage. My sister, a former pianist and me still pounding away on this keyboard as if it was the manual typewriter I used in the sixties, have bad hand pain. My sister is ten years older, and her hand pain is worse. I’m noticing my other pain centres and new ones now the biggest one has been relieved.

Doctors know this pain is often made worse by bad weather changes, though they don’t know why. So level 8 pain on Monday and Tuesday, dark and wet, only six and declining today. I do have a fantasy of a pain free day, but it is a fantasy. Today my right side is generating most of my pain for the extra use it’s had standing in and supporting my entire weight, and that of my wheelchair when I chuck it into my van. I hold onto to the van’s grab bar with my left. So today it’s my right knee, my right hip, my right shoulder wringing pain, add the hands, especially now that I’m typing again, and the sciatica thing. Well to sum up. I hurt pretty much everywhere. Hello chronic pain.

I’m grateful for the level of pain relief provided by the amputation. But I still hurt pretty much everywhere else, and on bad days it can still get to 8. No, I’m not looking for a reason to extend my handicapped parking permit, renew my pain meds, or to keep boring people with my bitch and moan.  That’s just the way it is. Pain is an everyday part of my “new normal.”

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