Good news and bad news. My blood pressure is a low 110 over 70, not unusual in our family, my father and brother the exceptions. It seems I arrived at my GP’s with barely a pulse. The doc checked the pulse in my feet, including the one that will be sacrificed next Thursday, for the greater good of the rest of my body and my brain. All in order, if sluggish. “Haven’t had my afternoon coffee I says.”

Then he says, come up and I rolled my wheelchair next to his to look at the blood test results on the computer. I still  haven’t found my hearing aids. Way to many red highlights. My cholesterol has finally reached unacceptable levels (first time,  for everything) triglycerides also high, but at least this time I know it’s not my beverages. Sugar and uric acid good. The final blow was the pronouncement that my blood protein levels like albumin were too high. So much for cooking roasts I thought. Checking the Mayo Clinic site though I’ve learned
I’ve  just now checked the Mayo Clinic site too find some relief in

“A high-protein diet doesn’t cause high blood protein. High blood protein is not a specific disease or condition in itself. It’s usually a laboratory finding uncovered during the evaluation of a particular condition or symptom. For instance, although high blood protein is found in people who are dehydrated, the real problem is that the blood plasma is actually more concentrated.” So just another thing to watch and test. He prescribed a statin for my high cholesterol, taking my medication number into double digits.

Finally though, the concern remains with my irregular and incompetent heart, so more  ECG with echo (?) and more tests. I can’t imagine why it’s been left to the last weeks, and only with my prodding. So much for my bitch ‘n moan. Time to get back to make my place habitable for granddaughters!

March 20, 2018

Good news. I have no signs of scoliosis which runs in the family.  I am arthritic to various degrees in all my joints, but most painfully in my back, why it was checked. More about that later. The big news is my below the left knee amputation scheduled for April 5 th. Blood work tomorrow, pre-op physical next week. 

The 2015 ankle fusion didn’t take. One of  three failures of three hundred ankle fusions done by my foot surgeon. Too late to guarantee a succssful ankle replacement, while there is hope of a pain reduction, no guarantee following my amputation. I will get a prosthesis and learn to walk again.  I spend a lot of time in my wheelchair, or resting.    I am fundraising for an All Terrain Scooter, mentioned in my blog and on FaceBook. It has a degree of coolness that cannot be achieved with walkers or electric scooters. Donations welcome! 

The last entry was almost exactly a year ago. 

10:00 pm March 16, 2017; updated Friday March 17th from 8:45 to 10:00 a.m.

Right now: flurry of pins and needles, pain in left foot held at bay say 3 (From 1 to 10) by 10mgs of Percocet when I should have only taken 5mg. More pain today generally everywhere re weather change?
Last week: Left foot pain starts to return after cortisone shot. Figured this out by how I walked up the steps to the house. Back to one foot at time, dragging the left as before the shot. More pain at the front and back and on top of foot, also higher up on left side.
2 weeks ago: a pretty good week foot-wise. I started walking up the steps putting weight on alternate feet. What I had thought was a balance problem, or an icy step problem, had at its root my body’s desire to protect my left foot by not putting weight on it. Also my foot was usually straighter (noticed barefoot inside) to walk, rather than way duck walk, and often dragged.
Ankle injection3:weeks ago 24 hours after the shot all seemed to be well certainly ankle wise what hurt was the top of the foot, and higher up on the left side (top of fibula?). Hopeful.Analysis: three weeks exactly we’re back where we started with left foot,
Next steps: (ha).
*Orthopedic boots from the ground up. I am getting a lot of strange callous on my heels that could be walking/brace related. If my legs not quite the same length compensations can be made and the actual insoles could help with my stance and balance.
*If ankle replacement is a non-starter, I consider amputation as a good option.
It’s not the surgeries I mind to make good attempts to fix a bad ankle, but the amount of downtime after. I know about phantom pain. As it is, often I need to look at my feet to see if I’m wearing braces, shoes or socks. Is there also phantom neuropathy? After amputation I can look and see which foot I’m missing.

More poly-neuropathic pain at nighttime, from toes to mid calf or knee. Not every night, no pattern.
I have experienced pain in different parts of my body in the last two weeks. Knees now usually at bedtime, not so unusual. Arthritic pain. Perhpas in sympathy with my sister who has knee replacement surgery scheduled for April 25, 2017. Update, my sister has recovered well and now in better shape than me or my brother who is recovering after a bad car accident. 

Main pain-centre most days (today the left ankle wins). It runs across my back, kidney to kidney (just as locator, note) down my right side to my hip, dividing to my buttock and flank, and the other down the inside of my groin. CT Scan imaging shows considerable degeneration, loss of cartilage. My back has several issues related to my bad cartilage genetics. Problems include spondylolisthesis

Spondylos – vertebra; lysis – break; listhesis – slip.spondy

Spondylolisthesis is a condition that occurs when one vertebra slips forward over the vertebra below it. There are different types of spondylolisthesis – congenital spondylolisthesis, isthmic spondylolisthesis, dysplastic spondylolisthesis, degenerative spondylolisthesis and pathologic spondylolisthesis. This condition affects the lower vertebrae and is a painful condition.

(Wiki for spelling, and then the article seemed to cover many of my symptoms) Deterioration in enough places you’ll need to look at the report. The damage at L5 may be causing the biggest pain by pinching the nerve implicated in the pain location and  reduces my ability to sit for more than hour, which I prefer to do when I am writing. The spinal cord is shown to be ok.

Tests so far include blood-work, hands-on palpitation, xray, ct-scan and ultrasound, without finding my sugars or PSAs out of whack or locating kidney stones, gall stones or infection

Incompetent Heart ValveHeart:
Flutter now joined by diagnosed “incompetent heart.” ok incompetent heart valve.
Not much to do about either, but watch for changes. Taking 2.5 mg morning and again at night for 5mg of a Beta Blocker, Busperinol (?) and one baby ASA daily.

Hands and Elbows:

Hands a constant, sometimes easy to see with red knuckles, preferring exercises to gauntlets but use both. I usually can’t sit to type long enough for the gauntlet’s to give relief that they do over several hours, driving is the same. THEN Out of the blue, infuriating to wake up one morning with 6-7 pain in my damn elbows! Never before. Now sometimes I notice mild aches. Fri.March 17 2017.  The damn elbows again! Vicious! 

Current difficulties
My Dad lived to be 91 with all his original parts. The thought of living another 25 years with varying degrees of pain is daunting. And I don’t mean “aches and pains “ common to aging. I really had no idea what Chronic Pain was until it was happening to me.




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